Seasons

I wish I had the ability to blog at least once a week. That isn’t going to happen right now. This season in my life is busy. I am stretched thin. Especially last week. I feel like there isn’t any of myself leftover to actually take care of myself. I’m sure every mom has days, weeks, months or even years like this. I’m hoping it’s not months… or even weeks. I’m hoping things reorganize themselves this weekend. It doesn’t look promising though since our dryer just broke and I have 6 loads of laundry to wash.

This is going to be an update post. Another one. I make this blog in to a blog book for my kids to maybe read when they are grown, so I always feel like I need to document everything, even if it was two weeks ago now…

Halloween
This halloween made be cry tears of happiness. I stood behind Sofie at yet another door that she had eagerly ran up too, excited to trick-or-treat. This is her third halloween with us. The first two she just managed to do a house or two then spent the rest of the night in the stroller. This year was different. She did nearly as many houses as Livi. She was excited to! She ran up the drive ways! She said “treat” to the home owners, for ‘trick-or-treat’. She said and signed “thank-you” and “bye”. She asked for “more” from some of the home owners who she thought weren’t giving her enough 🙂 My princess made me smile. This was a big accomplishment for her.

Evie was my little red riding hood and all bundled up happily in the stroller watching her sisters and other kids run around. Livi was Rapunzel. She, of course, was so excited for trick-or-treating. She was in her glory. I also got to volunteer in her class party that morning. So fun! The week before I got to help chaperone the girls first field trip! They did SO good on the bus which they were so excited about!  We went to the pumpkin patch! It was great meeting some of their friends and getting to know some of the parents a bit better!

Sofie
This week, we have noticed a little bit of regression in Sofie. (There was a poop smearing incident, which hasn’t happened in over a year.) There’s been some upsets to her routine…

Last week we had her IEP. It went great. I felt like we were all on the same page. I had been nervous but my mind was eased. This week, with out notice, her main EA left. I found out at the end of the EA’s last day, when I was picking her up. Her teacher also informed me her last day would be the next day. What?! Why was there absolutely no notice given? Ridiculous. While we are in full favour of teachers and EA’s being free to leave and take other positions, this hiring, postings and seniority bumping process in the school system is insane. It is not in any of the children’s best interest AT ALL. I intend to write to the school board to make my concerns for this process known.

The teacher that always covers sick days in Sofie’s class will be covering until the posting is filled. She has a brand new EA, until her post is filled as well. So frustrating. I haven’t met the new EA, but she is brand-spankin’-new. While I’m trying to have an open mind about the situation and hope for the best, some things already happened on the first day which I am not thrilled about. I’m trying to tell myself to relax. It was only day one.

Livi
Livi needed a mental health day on Thursday. I’m in favour of kids taking mental health days every once in a while. They need a break too. I did want to understand why she was needing it though. After some cuddles and conversation I discovered that she was upset that she had done some of her letters backwards. She thought she was the only one. The teacher had her correct them which took her too much time and she didn’t get to play. Taking a long time to complete her work has been noticeably ongoing since the start of school. At home, when things seem to difficult for her or don’t go the way she wants, she gets upset or quits. I wasn’t sure how worried I should be since the teacher didn’t think it was a big deal. Now that she is wanting to miss school because of it, I’m worried. We will get a hold of this perfectionism and performance anxiety that she has.

She comes by it naturally. She is the first child of two oldest children who are perfectionist in our own rites. We are working on ourselves but now we need to jump it in to high gear to help our daughter. I don’t want this to follow her. I don’t want her to think her self-worth is tied to perfection. I don’t want this perfectionism to jump to her physical body where things could turn deadly with eating disorders or cutting. I used to cut. I know. It may seem like I am jumping to extremes here, but I feel in my gut that this is big. We need to help her through this now. I’m researching articles and looking for books with strategies to help her and us. I think I’ve come up with a few things already. Pray for her and us in this.

Evie
Evie has a stubborn side. I think it is funny how I see it so clearly already. She hits and throws things very purposefully! Gah! She is so sweet though. Livi was crying one day and Evie crawled up behind her and lay her head on her back, as if to give a hug.

Evie is my not the easiest baby in the world. She is very inconsistent which I find frustrating. Some nights she is up four times to nurse and others she sleeps through. Some days she is a whiny clingy mess and others she is content to play by herself and nap perfectly through out the day. She is at a disadvantage as far as a schedule goes though. She has to tag along to pick up her sisters from school, run errands, or go to appointments. Her naps and sleep cycles are frequently interrupted. Curse of the third child, I suppose.

Sisters
My daughters are such good sisters to each other. I love it. Watching them together is priceless. They are going to be such wonderful friends.

Livi, these days, has me especially awe struck. She is such a caring, responsible and empathetic big sister. If Evie cries she races to find a toy for her and redirect her attention. She watches out for Sofie, constantly. She plays with both her sisters, running and chasing. She lets them both climb on her. She is so patient with both littles. She shares with them. She uses her words with Sofie and takes the time to teach her. I’ve said before that if Livi got paid for the amount therapy she does with Sofie she’d have her college and down payment for a house in the bank already! Her love warms my heart.

Sofie has been better than I had ever hoped with her baby sister. I was so scared of the back lash of behaviours I’d get from Sofie and afraid that Sofie would hurt the baby. She does push her every once in a while but otherwise she is pretty amazing with her. She pets her hair, squishes her cheeks and asks to hold her.

Evie will come into her own place as the baby sister. I don’t know, yet, what place she will hold. From her coy and beautiful smile, I see her bringing a quiet, peaceful joy. She is more laid back, in some ways. I think her big sisters will seek her out for those quiet moments of needed peace. She reminds me of my mom, who reminds me of my Grandma. Both are strong, courageous women who have quietly overcome a lot in their lives. They are the pillars of their family, who graciously put up with a lot, but bring so much needed peace.

Jon
I don’t always write about Jon, unless it pertains to me. He is a much more private person than I am and I try to respect that. He has also had a hard week, for his own reasons which are his to tell. His hard weeks add to mine. I want to listen and give him what he needs but after weeks like this, I feel to stretched to be the wife he deserves. I know he understands and, usually, doesn’t hold it against me. He really is a very understanding man, a good husband and an incredible father.

Me
This next week I am going to try and take some more time for myself. I’m going to go shopping, even though it is for the kids I will enjoy it. I’m going to eat sushi… (Update – it’s Sunday now…I ate it last night and really enjoyed it!). I’m going to watch a romantic movie… or at least a romantic TV episode of some kind. I’m going to have a clean house (even though that may add more work, I feel much more relaxed when it is in order). I’m also going to start reading a Brene Brown book, which will help give me a little perspective in my current season of life. Christmas is coming and Caramel Brule lattes are at Starbucks again, both make me very happy. This next week will be better 🙂

Two Years Later

These two weeks are filled with celebrations in our family. The most ongoing is Sofie’s Two Years home! August 1 marks the day we first met Sofie. August 4 is our Gotchya day. The day we took Sofie out of the orphanage and in to our arms forever. August 14 is when we arrived in Canada and the 15th is when we woke up all together as a family!

Two years later she is flourishing. Our social worker comes for her final update to send back to Bulgaria in a few days. I’m excited for her to see the change in her. Sofie is so much more than the shadow of the child that we met two years ago. I was reading back in this blog from our first weeks with our second daughter…. (Check out my archives from August and September 2011)

Then:
Sofie is developmentally at a 9-12 month old baby with a 3 year olds strength and agility. She hits and pulls hair.
Now:
Sofie is developmentally around 2 year old with the strength of a 4 year old. She still hits a bit but knows she shouldn’t and understands it hurts. She no longer pulls hair.

Then:
She still prefers baby pablum cereal but we are pushing other food and this morning discovered she loves mushed up banana and Cheerios! We even got a few sips of chocolate milk in her!
Now:
She will eat anything but does not like raw veggies or fruit much. I have to work to get that in her. She LOVES chocolate covered almonds though! She feeds herself and drinks out of a normal cup, though she can be pretty messy with it.

Then:
She is really starting to understand the signs for ‘more’ and ‘all done’ and uses them correctly when it suits her….. We’ve really only heard “aaaahhhh’s” from her but today she whipped out a few “bababa’s” and even a few “mamama’s”!
Now:
Sofie understands most of what we say and can say or sign well over 100 words. Not everyone can understand them but she is saying them! She communicates making her choices known. She has choices.

Then:  
She does do some self stimulating rocking thing on her back. It looks like it is a symptom for being bored at the institution
Now:
She still rocks, but only when she listens to music. She doesn’t click her teeth anymore like she used to either.

Then:
Right now she is the top of a 12 month old and the waist of a 9 month old… I think she is too tall for 9 month pants though.
Now:
She is comfortably in size 4! Still skinny but she weighs 32 lbs, up for 19.5lbs when we first got her!

Then:

Now:

Sofie has come such a long way. When she first came to us she was just surviving. Just existing. She sat, still. Like she was in a cocoon. I literally watched the child inside her break free and take over the shell it was hidden in. She grew from the inside out. She emerged. It was a long process and there is still some remnants of her past but she is alive now.

She has experienced trauma. Real, gut-wrenching, how-can-there-be-people-who-would-do-that-to-a-child trauma. Neglect. Starvation. All types of abuse. We don’t know everything. I’m not sure she will ever fully be free of the effects of some of it but she is a conqueror. We are winning the battle the against the hurt. Together.

She knows love now.
She knows Mommy and Daddy.
She knows family.
She trusts.
She laughs.
She cries.
She moves.
She eats.
She sings.
She dances.
She is alive.

Sofie is our monkey. She grabs a hold of us with her whole body to give the best hugs. She is silly. She likes to climb. She wants to do everything her ‘big’ sister does. She makes her wants and choices known. She adores her sisters. She loves music. She loves to dance. She loves to be with people. She is smart and knows when to make her DS work for her! She loves the water. She loves the feeling of being thrown up in the air. She loves the trampoline. Sofie likes babies. She loves chocolate. She likes tickles. She likes to bake. She loves to hug. Sofie is a free spirit.

We Love Sofie to the moon and back. I can’t imagine life with out her! She keeps us on our toes and shows us what love can really accomplish. We are so blessed to love her.

Walk for Awareness!

I was sick last year for our first Walk for Awareness, which celebrates and raises money to support people with Down Syndrome! This year I was almost sick with my back out but I got too go and even got too walk!

It is really a fun afternoon, especially for the kids. There is mini golf, bouncy castles and slides. After the walk, we get to enjoy a yummy hot dog BBQ and prizes!

I love celebrating DS. It is pretty awesome! My daughter and sister are two of the most special people I know. Angels and Imps 🙂

This years Team Maggy & Sofie!

Evie had a lot of fun too!
Hopefully next year more of my dear family and friends can join us! It really is special to be all together  with so many other people who adore and love people with DS! It is also great to help raise money for the Down Syndrome Society to help pay for therapies for families who can’t always afford the extra costs.