Sofie’s 7th Birthday!

Sofie is 7. How the heck did that happen?!
(I did start this on her birthday but have no time or energy to blog anymore! Hopefully I can find time for it again.Sorry it’s so late!)

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The frail, sickly 3.5 year old that we brought home has vanished.

She is alive, vibrant and triumphant! She is such a wonderful, vivacious child. I’m so blessed to be her Mommy!

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Her personality is infectious. Going places with her is kind of like being in the company of a rockstar. Livi has learned the meaning of the word ‘popular’ because of her. I’m not sure if that’s a good thing…

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She is loving school and works hard at her words and writing but it is slow coming right now. She can now trace and verbally spell her name though! She goes in to the classroom with her thermos almost totally independently now, hanging up her jacket and backpack on her own. She still needs help with her shoes and some prompting but it’s coming! Socially, Sofie is doing great! She has real friends and has a best friend at school who is a complete little gem and Sofie loves her. It warms my heart. I was so worried about her making friends.

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Sofie loves playing with hair, the longer the hair the better. I have very long hair right now and love relaxing with her while she plays with my hair. Most of the time she is really gentle 😉 She still loves dancing and music. We have dance parties numerous times a week. I think Taylor Swift is still her favourite but most Pop music will do!

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She has so many words now and we are seeing the beginning of conversations with her. Her EA at school works on sign language with her too. I’m not so great at it but do see it helping her communicate! As her communication keeps expanding I really see her maturing. A few months ago Evelyn and Sofie were developmentally equal but Sofie has jumped ahead again!

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Her favourite foods are tortellini alfredo and ice cream. She will eat veggies, and most fruit and nuts without a thought now so I don’t worry so much about her nutrition. That is a huge advancement over the last 2 years!

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Sofie is doing so well developmentally and behaviourally. It’s amazing really. She still has her days, a few a week actually, but we are all working hard and together 🙂 I can’t wait to see how far she’s come by next year!

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Happy Birthday Sofie! You are a miracle!

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The R Word

When you say someone or something is a “retard” or “retarded” you are using a derogatory term insinuating that what or who you are talking about is stupid, slow, ridiculous, crazy, disabled, uncool, etc…

The word comes from a medical term still used occasionally to describe my daughter’s extra chromosome and other’s intellectual disabilities.  Basically, when you use the r-word, you are saying something is “stupid… like Sofie”.

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I cringe at the knowledge that Sofie and her sisters will understand what that word means one day. They will know that whatever or whoever is being talked about is “ridiculous like Sofie”. They have already heard it. Right now, my girls can’t imagine anyone associating Sofie with being anything less than incredible. As family, friends, thoughtful human beings and people who love and respect Sofie, can you help us to keep that heart-crushing day from coming.

Pledge to end the r-word with us. 

http://www.r-word.org

Obviously we know that Sofie is anything but stupid or ridiculous. She has been through and overcome more in her short life than most adults have. She works hard everyday and comes up against challenges she has to overcome hourly. She is someone to look up too, not down on.

Lets respect everyone.

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A Story

There’s this remarkable story…

A few stories actually.

They all impact each other and come together in the end.

Story #1 – About 56 (I think) years ago John K. became the big brother to a delightful little girl named Shirley. Shirley has Down Syndrome. I don’t know all the ups and downs of that sibling relationship but I do know that there is a lot of love shared between the two.

More than twenty years later John met and married Mary Ellen. She had had a little bit of experience with people with disabilities before meeting John and shared his love for differently abled people. Their passion for people with special needs grew and after having three birth daughters they began fostering and eventually adopted 4 children from the foster system. Two of them have Down Syndrome!

About 6 years ago they decided it was time to adopt one more child with DS and brought Aiden home from Bulgaria! He is a big wonderfully comedic 14 year old boy now with the best Bulgarian accent you will ever hear.

Story #2 – My husband Jon met the K family about fifteen years ago when their first adopted child with DS, Brent, was about 3. He remembers playing with and loving him at church each Sunday. They were good buddies. After high school Jon decided to volunteer with the K family at camp Amasa where they ran camps for adults and children with special needs. This was his crash course into the community of the differently abled. He can tell you many hilarious, life changing, perspective altering moments from that summer.

Story #3 – I had always been drawn to supporting, teaching and befriending people with special needs. My mom remembers it as young as 5 years old. When I was 16 my mom made the decision to bring Maggy in to our house. Maggy has Down Syndrome as well and fit in to our family perfectly. She actually could be credited with getting most of us through our teen years relatively unharmed. No matter how mad we where at the world or each other, we were never mad at her. She kept us coming home and was a calming spirit in our house. She is everyones favourite sister. When she joined our family I started talking about wanting to adopt my own child with DS.

Our stories coming together

Jon and I met in college and started dating about 12 years ago. I remember talking openly about wanting to adopt a child with DS and him being completely on board. His work with Amasa and watching the K family grow had prepared him for me!

We followed closely and watched the K family adopt Aiden. I was so happy for them and wondered when it would be our turn. Aiden came home in October 2009 and in January 2010 Mary Ellen sent me an email from her agency for a file of a little girl needing a family. We didn’t end up adopting that child but it got our wheels turning.

It was time for us to adopt a child with DS. Jon and I jumped in. Although it was much earlier in life than we had thought it was the right choice. We have been so blessed by the adoption process and by Sofie, our own Bulgarian angel. In August 2011 we brought her home.

At the airport, first moment together as a family.

Story #4 – John and Mary Ellen’s oldest daughter, Heather, has known for a long time that she would adopt a child with DS too. My Jon was in youth with her and worked with her at the camps. We have been honoured to walk with her and try to support her in any way we could. She also chose Bulgaria to find her son. And yesterday, her own dreams came true.

Heather became a mom to Wyatt Timothy Vasil K and brought him home after more than 24 hours of traveling yesterday! (His middle name, Timothy, is after Jon’s dad who passed away 6.5 years ago. He was the K’s pastor as Heather grew up and encouraged her, reminding her she would make a difference.)

I got the privilege of being their chauffeur between the airport and ferry, as well as photographer for this momentous occasion! Here are the pictures from last night…

 Waiting
 Nana’s first sight. So much joy in her eyes.
This moment is pure emotion. 
Joy. Relief. Thankfulness. Wonder.
Welcome Home Wyatt.
 The family that made it to the airport. 
He has a lot more of them to meet today!
 


Congratulations Heather!
 
I’m so glad that you stepped out and chose to adopt this little guy. You and him make such a perfect family together. I’m thankful there are strong women, like you, in this world who are willing to follow their hearts and make a difference. This is really just the beginning. Thank you for letting me be a part of this day and know that Jon and I will support you and little Wyatt in any way we can!
 
You can read her own blog and details of her adoption HERE. 
 
 
I adore how all these stories have wound in to each other. I’m tempted to say that Mary Ellen and John’s story has come full circle with Heather’s adoption now but I don’t think that’s accurate. I think lives are going to continue to change because they have witnessed or been a part of our stories. I think more stories are going to be made and I can’t wait to see that happen.
Thank you Shirley for being born and igniting a passion in your big brother.
Thank you Mary Ellen for marrying John and building the family that you have.
Thank you to you both for setting such a beautiful example of love and acceptance and perseverance in your own adoption journeys and family.
Thank you for preparing Jon for my world and having a huge part in the amazing man he is today. The experiences he has had with you were also a big part of why he was hired in his current career. So really our entire family’s well-being is, in part, thanks to you!
Thank you Maggy for being the wonderful person and sister that you are and solidifying a passion for adoption and DS in my own heart.
Thank you to my mom for bringing Maggy in to our lives and being the strong, supportive woman that you are.
Thank you to Jon for being the truly remarkable husband, father and man that you are.
Thank you everyone who has supported us in our own adoption and parenting journey. We absolutely could not do it all with out you.
Thank you to Heather for listening to your heart and jumping in to this with both feet. You are incredible and are going to rock this Mommy biz!
And a huge thank-you to our Bulgarian angels! Aiden, Sofie and Wyatt! You are three miraculous children who have been through more in your short lives than most adults ever will. You are survivors, brave, funny, joyful and loving kids. I can’t wait to see what you do in your lives and how you change the world! You’ve changed our world so much already! I can’t wait to see all three of you together one day!